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By toxicfur (Sun Jan 06, 2008 at 10:08:36 PM EST) (all tags)
I've started this diary twice. Both times were interrupted, but what I wrote earlier is in the body.

My mom is sleeping currently. It's been a very bad day for her physically. "Throwin' up blood is so nasty," she said softly, almost as an aside, between retches. When she feels able to let go of her bucket, I take it, dump it in the toilet, rinse it in the bathtub, and bring it back. A couple of times a day, I change the liner. As she retches, I rub her back, or wipe her face with a cool washcloth. When it's over, I hold her head against my chest, as if she's an infant. If I think of her as my mother in these moments -- as the woman who held me just like that when I threw up from viruses and fevers when I was small -- I cry, and tears run down my face and into her hair. I try very hard to focus my energy on comforting, not on remembering.



Approximately 3:00 pm. My mom is resting. Oh, I should probably explain that because of the swelli.....

Approximately 3:15 pm. Fuck. The phone rang and roused her -- extended family, this time -- and now she's sitting up in her chair, that I was about to explain, with the vomit bucket in her lap. She swivels back and forth, and her face is etched with -- not pain exactly-- maybe discomfort. She's no longer keeping fluids down, and so she can't keep her medications down, including the vicodin for her back pain. She lights her cigarette and coughs, grimacing, the smoke curling around her head as she vomits blood and Diet Sundrop and stomach secretions and thick mucous.

My body aches in sympathy as I watch, and I want to do something -- anything -- to make it better. That she is completely coherent and lucid. This morning, she asked me how a certain husites 3rd date went last night.

Approximately 5:00 pm. Two hours pass. I get ready to write again, and my brother P stops by. I give up and decide to wait until everyone is gone and my mom is asleep.

Approximately 9:00 pm. This is real time, now, and my brother J and his wife are sitting across the room with their laptops. My mom is slumped in her chair, asleep. Because of the swelling in her abdomen and her bad back, she is incredibly uncomfortable in the bed. She can't breathe well when she lies down, and she gets more nauseous. So she sits in the executive office chair with the massage functions she's never used, often with her feet on the edge of the bed.

Now, her legs are crossed, and her head falls forward toward her chest. I offer her my travel neck pillow, but she declines. I've learned that she says no to almost everything I ask her. Some of the stuff I've just started doing -- rubbing lotion on her hands and feet and arms. Rubbing her back when she throws up. Bringing her a cool washcloth to wipe her face. I just do it, and she tells me it feels good -- but she would never ask because she doesn't want to be a bother, I presume.

She roused up a moment ago and I asked her how she was doing. "Doing good now," she said, almost surprised. As I started writing earlier, she's incredibly lucid. I was warned by her and by my uncle that she'll likely become irrational and that I should watch out for that. So far, she's asked me about cam's date, reminded me to take my dinner out of the freezer to thaw, and generally shown me that she's still competent. Her sense of humor is fading, but she still smiles at cute pet stories and LOLcats. She showed interest in the NFL playoffs, even. In some ways, the clarity seems like it would be worse -- she has full comprehension of everything that is happening to her. Still, she seems to be at peace.


Yesterday, my aunt L was here, and she warned me that $real_estate_tart was coming to have a paper signed regarding a piece of my grandfather's property. Aunt L told me that she really disliked $real_estate_tart, that she was a dingbat.

"I went to school with her," I said. "I didn't like her at all -- she wasn't very smart, and she always thought she was the center of the universe."

"Yeah, that sounds right," L said. "I'm going to tell you what she said to me on the phone yesterday, but don't tell your mother because it'll just upset her. My phone rang yesterday, and I didn't recognize the number. When I answered, she said, 'How's $tf-mom? Is she lucid? Is she conscious?'" L paused for a swig of coffee. "I said, 'Who is this?' She told me, and said that she just needed to get that contract signed. She could do it with just my signature, but it would be better to have $tf-mom's as well. Then she said, 'What's happening to her little dog? I want that little dog.' I was so offended," said L. "I couldn't believe that she said that. I told her that she had arranged for her daughter to take the dog."

I was shocked. Are people just that crass? Then, after hearing this story, and $real_estate_tart being an hour late, I hear from my brother that the bitch wants to say hello to me. I was in the process of helping my mom to and from the bathroom, so the tart had to wait. When I saw her, I realized just how much I'd changed. I'd remembered her being so much taller and larger and meaner than me. When I was in high school, she was a bully with auburn hair and and dark freckles and bangs almost large enough to have their own gravitational field. When I saw her now, her slightly frizzy hair was a badly dyed bottle blonde, and her make-up was about as subtle as spackling. "Oh my God!" she said when she saw me. "You haven't changed a bit!"

"I certainly hope I have," I said. And I bit my tongue, wanting to say it was pretty clear she hadn't changed from the bitch she was in high school.


Rusti, my mom's Jack Russell terrier, is becoming increasingly aggressive toward many people and dogs (not me or my brothers, though, thankfully) -- but only in my mom's room. She spends all of her time watching my mom, and tonight, when my mom was trying to rest, Rusti stood on the edge of the bed, staring at my mom, growling and woofing. She knows something is wrong with the most important person in her pack. She's doing her best to protect my mom and to comfort her.

Yesterday, aunt L vacuumed my mom's floor (at my mom's request) to get the dog-toy fuzz up. Rusti spent the entire time attacking and biting the vacuum cleaner. The closer it got to my mom, the more frantic she got. I wasn't sure whether to laugh or to cry. Outside of my mom's room, Rusti curls up in my lap and sleeps soundly, utterly relaxed. I have hope that she'll be less neurotic when her life is a bit more stable.


The first night I was here, my mom talked about her wishes for her funeral/memorial service. She dislikes the preacher at her church. She wants to be cremated. She wants to be buried in the space next to my grandmother (her mother) so that her children and grandchildren will have something concrete to see, and somewhere to go to remember her. Most importantly, she does not want an open-casket visitation. "I don't want people gawkin' at me," she's told me more than once. She didn't want it for either of my grandparents, either, but she got overruled by her sisters.

Aunt L asked me if my mom had this discussion with me, and I said yes, that I knew what she wanted for the final rites. I said something about no open-casket visitation and Linda said, "Well. The reason we overruled her when Mother died is because we knew there were all kinds of rumors."

Er. What?

She continued, "I heard more than one person say that they were surprised at how good she looked, that they thought the cancer would've just eaten her up. And we wanted to make sure we squashed any kind of rumors like that."

Er. What? If there are rumors like that going around, then people need to get lives. Well, they do anyway, but I'm not going to refuse to honor my mother's wishes because people might talk about what condition she was in when she died. It's nobody's business anyway, what the cancer has done to her. It's enough that it will, at that point, have killed her.


She woke up a few minutes ago, nauseated. She drinks a bit of Diet Sundrop and ice. Throws up. Swivels back and forth in her chair. Finally, she sits the bucket down and lights a cigarette. I read her the email from my co-worker, talking about how Rocky has settled in. My mom smiles when Rocky is described as "quite a character."

Then she grabs the bucket, and she vomits violently. I rinse out her washcloth and wipe her face. I pray for peace and mercy. Please, please, let her stop hurting. Please let her find peace. Please give me strength. Please.

< mOJO rising | BBC White season: 'Rivers of Blood' >
Today and Yesterday | 23 comments (23 topical, 0 hidden) | Trackback
&&HUGS&& by reza (4.00 / 2) #1 Sun Jan 06, 2008 at 11:00:35 PM EST
You have a strength within you that could move mountains.  I wish I knew 100 more of you.  You have a heart of gold.  In the same situation, I don't know that I could write as gracefully as you about the space I were in.

And know that what you do now makes up for all the silly things you think you did in your youth.  Your love for her shows through clearly.

HUGS
Reza


" Be who you are and say how you feel, because those who mind do not matter, and those who matter do not mind!" Dr. Seuss


Thanks. by toxicfur (4.00 / 2) #13 Mon Jan 07, 2008 at 08:03:14 AM EST
The writing is for me, because I need it now, and because I know that the details will fade -- there are things about this time that I'll want to remember. I know -- because she's told me -- that my mom appreciates what I'm doing. And I hope that she forgives me for the stupid things I've done.
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

how can you doubt by Kellnerin (4.00 / 1) #23 Mon Jan 07, 2008 at 06:09:31 PM EST
re: stupid things in the past?

You are amazing, just continually amazing. And your mom clearly rocks. As notafurry said, I'm proud to know you, and feel so lucky to know you in rl as well as being mutual Internet weirdos.

--
"Late to the party" is the new "ahead of the curve" -- CRwM
[ Parent ]

hugs by R343L (4.00 / 2) #2 Sun Jan 06, 2008 at 11:19:10 PM EST
And really I have nothing but that. You really are amazing.

"There will be time, there will be time / To prepare a face to meet the faces that you meet." -- Eliot


she'll have peace by LilFlightTest (4.00 / 2) #3 Mon Jan 07, 2008 at 12:03:43 AM EST
and whether you realize it now or not, you will too.   it's hard to be brave and strong, but you're doing great.
---------
if de-virgination results in me being able to birth hammerhead sharks, SIGN ME UP!!! --misslake


You're doing a wonderful thing by notafurry (4.00 / 2) #4 Mon Jan 07, 2008 at 12:23:39 AM EST
And an incredibly hard thing. And as much as it sucks to be there and to be doing this thing, you are an amazing person for doing it. I'm proud to know you.

Well, you know. Sorta. For an imaginary internet person, anyway.

Also, re: last wishes... We have a few family members with similar thoughts - they wants a place for their grandkids to go and visit, etc. But they didn't want a cemetery plot - in the words of my uncle, "they're full of dead people. Spiders. Probably zombies."

Perhaps it was a good thing he was the first to need it, because he'd thought it out. My uncle has a fruit orchard and winery (in Iowa. Yeah, me too.) The land is firmly in the family and should remain there for generations. In the back of the orchard, the youngest row of trees is surrounded by flowers, tended by the more active gardeners of the family. The first tree in the row has my uncle's ashes underneath, buried when the tree was planted (with a full cup of his favorite coffee, a pack of his cigarettes, and a shot of bourbon.) There's a little bench in what will be shade of the tree. It's a very pretty spot.

Just a thought. Of course your mom has her reasons for wanting the spot she's chosen, but it's something to consider. I'm sure she wouldn't want the grandkids to risk zombie attacks, after all.



Thank you. by toxicfur (4.00 / 1) #10 Mon Jan 07, 2008 at 07:57:23 AM EST
As far as where she's buried, she said at first that she was just going to tell us to scatter her ashes. But then she decided that being buried where several generations of our family are buried is probably a good thing. I tend to agree, and being buried next to her parents seems fitting.

I'll just make the grandchildren are armed with cricket bats when they go to the cemetery. ;)
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

Hang in there, hon... by ammoniacal (4.00 / 2) #5 Mon Jan 07, 2008 at 01:22:12 AM EST
Help's on the way.  *Hugs*

Irony: ammo says it's time. Tom is blocked.


Yes, it is. by toxicfur (4.00 / 2) #12 Mon Jan 07, 2008 at 08:00:59 AM EST
And thanks.
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

give you strength?!? by TPD (4.00 / 2) #6 Mon Jan 07, 2008 at 06:12:00 AM EST
YOU HAVE STRENGTH, coping how well you are is amazing!

Hugs to you in this terrible time!

Rock Hard Abs are just a sw-sw-swivel away!


Aaargh by R Mutt (4.00 / 2) #7 Mon Jan 07, 2008 at 06:57:11 AM EST
It's horrible but there's nothing more you can do. If you need to take a break or get someone to cover for you for a bit, or move her into the hospice, don't be ashamed to share the burden.



Thanks. by toxicfur (4.00 / 2) #9 Mon Jan 07, 2008 at 07:55:19 AM EST
As soon as her regular hospice nurse comes on duty (at 9am, in an hour, about), I'm going to call her and let her know that the vomiting is now uncontrolled. I hope that they'll be able to transfer her to the hospice center, where they can give her something to help her feel better.

My brothers and their wives and my aunt and uncle have been really helpful, giving me the opportunity just to get out of the house for a while -- and to feel while I'm here, that I'm not alone. I do have support, even though I'm doing most of the caretaking work. And, of course, through the caretaking that I'm doing, my mom is apologizing for being a bother, and thanking me for what I do. I just wish it could be more.
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

Hang in there... by Metatone (4.00 / 2) #8 Mon Jan 07, 2008 at 07:49:28 AM EST
and I have to echo R Mutt. Asking for a bit of help from whoever is a good thing now and then. Don't feel like you have to prove your strength by doing everything alone. Your mom and all of us here already know how strong you have been already.

Keep on keeping on.



I'm don't feel like I need to prove anything... by toxicfur (4.00 / 2) #11 Mon Jan 07, 2008 at 08:00:11 AM EST
except to prove to myself that I can step up and be what she needs. As I said to R Mutt, I am asking for help. I'm still fighting the guilt, though, in hoping that they will transfer her to the hospice center. I think if I knew someone else was caring for her, I'd be able to sleep more than a couple of hours at a time. I'd like to keep her home, but it's becoming beyond my capabilities to give her the care she needs.
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

We got night nurses by iGrrrl (4.00 / 2) #21 Mon Jan 07, 2008 at 12:10:37 PM EST
The hospice facility was too far away, so we hired people to be on duty at night. It was the only way we got any sleep.

Don't feel guilty. If you're worn through, you can't be there for her. You're taking great care of her, but you are more than a caretaker. There will be the time to turn it over to the professionals, and you'll know when it is. Then you can be you, for her. And for you.

"I don't have time for martial law, I have to get to the gym!" zarathus
[ Parent ]

Heartwrenching stuff . . . by slozo (4.00 / 1) #14 Mon Jan 07, 2008 at 08:18:39 AM EST
. . . I hope this is at least cathartic in some way.

About the funeral arrangements et al - I find funerals an amazing illuminator of many people's bad sides. The jealousy, the resentment, the utter selfishness, and even the ugly greed. It's sad how the masks come off around this time . . . on the other hand, you get to be very proud of your mother, who you are describing as very brave. Peace.



As usual, by blixco (4.00 / 3) #15 Mon Jan 07, 2008 at 08:48:10 AM EST
you're handling things, and handling them amazingly well.

Two things:

  1. You can't burn energy on the petty. Be blunt. Use the truth.  Too many people are too ignorant of the truth, too often.
  2. You're still perfect, but help is on the way.  Let help be helpful.

---------------------------------
"You bring the weasel, I'll bring the whiskey." - kellnerin


Thanks. by toxicfur (4.00 / 3) #16 Mon Jan 07, 2008 at 08:58:47 AM EST
I'm really glad that help is on the way. And the time for politeness is long past.
-----
If you don't get a Bonnie, my universe will not make sense. --blixco
[ Parent ]

Your Aunt L is quite mad by Merekat (4.00 / 2) #17 Mon Jan 07, 2008 at 09:49:11 AM EST
Her mother was dead. How 'well' she looked at that point is surely irrelevant. It is taking keeping up appearances far too far.

Your mother's wishes should really be respected in this. If they are worried about 'what will people think', what would they think of someone who denied a dying woman her perfectly reasonable wish?



HUGS by StackyMcRacky (4.00 / 2) #18 Mon Jan 07, 2008 at 09:51:26 AM EST
that's all I can say right now.



I wish for you, right now, by moonvine (4.00 / 2) #19 Mon Jan 07, 2008 at 09:53:11 AM EST
for your mother a peaceful and merciful sleep. Oh sweet girl. My thoughts are with you and yours.

Namaste.



Wishng you strength and peace, love; and by johnny (4.00 / 3) #20 Mon Jan 07, 2008 at 10:06:30 AM EST
send me the address of that tart.  I'll egg her house.
Buy my books, dammit!


peace. by clock (4.00 / 2) #22 Mon Jan 07, 2008 at 01:37:00 PM EST
everything you have done has been and will be perfect.


Clock is right. [nt] --vorheesleatherface



Today and Yesterday | 23 comments (23 topical, 0 hidden) | Trackback